Telling family and friends
It can be hard to think about telling other people about your multiple sclerosis (MS), especially if you’re still getting used to the idea yourself. The important thing to remember is that you don’t need to rush into it. You can take your time and think about how, and when, you’d like people to learn about your diagnosis.
When you tell people is entirely up to you. You may find that you carry on as normal for many years before noticing that anything is different. Your family and friends will probably have many questions about MS and what is likely to happen to you. It might be worth learning more about the condition yourself so that you feel prepared and can explain what it is likely to mean for you.
One important thing to remember is that the people close to you will also be affected by your diagnosis, particularly since the role of carer often falls on family members.
MS affects the whole family and it can sometimes be difficult to discuss the changes that MS brings, particularly with children. The following resources can help them realise that they are not alone in the feelings that they may be experiencing at this challenging time of their lives.
Children’s Hope for Understanding MS (CHUMS)
This is a US site that focuses on supporting a child’s need to understand MS when they are affected by an adult in their lives with the disease. It offers communication techniques and activities to promote understanding.
MS Trust: Kids’ Guide to MS
A printable booklet aimed at 6–10 year olds who have a parent with MS. Suitable to read alone or with a parent.
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